A (word) picture to describe my chronic illness

Living with a chronic, invisible illness is awful. This is compounded by the fact that I usually don't look sick. The following paragraphs are from my "book" about living with chronic illness. (It's more of a memoir, really). I wanted to share this picture of disability. This is addressed mostly to people who don't live with a person like me, and they don't really know what it means to have a chronic illness. This is written in past tense, as though I no longer deal with this struggle. But, my autoimmune issues flare up often and I have bad days. I still struggle.

           I want to paint a picture for you to understand what it is like to live with chronic illness. I will use my husband as an example.
            My husband, Paul, worked for UPS for several years. For quite a while, he was in the position of pre-loader. He put the packages into the trucks. Sometimes he had to load as many as four trucks at one time. The work was fast-paced as well as physically and mentally challenging. It was like a big puzzle that had to be put together every night. When all the boxes were properly loaded he was tired, but felt satisfied in a job well done.
          Then, a horrible thing happened. Paul's discs in his back became herniated. He could no longer do his job with the same vigor. And, there was a period of time that he had to take three months off while his back healed. During that time, Paul struggled with feelings of uselessness. He wanted to be able to get out and work.
           This kind of situation is hard for a man to deal with. Men were made to work. But, it could have been worse . . .
           What if instead of just being stuck in his bed every day (which was hard enough for a hard-working man like Paul) he had to lay on a couch at the delivery center and see boxes and boxes piling up outside of his package cars? What if he had to watch while someone else tried to do his job, but they were just not doing it as well as he could have? Worse yet, what if he had to watch a driver pull away from the bay with the work left undone and boxes strewn all over the floor?
          That was my life (in 2014, when I was at my worst). I knew my job description. Mother: makes meals, tickles children, plays catch, washes laundry, does the dishes, makes child do homework (or in my case teaches school), kisses boo boos, keeps the house looking nice. But, I was unable to fulfill my role as mother. Sadly, I had to watch as jobs went undone, finished half-way, or completed once again by my eldest daughter. I had to live in my mess . . . forever seeing that I couldn't do anything to help. I felt useless. I felt like a failure. There was no where to turn my eyes to avoid seeing reminders of my sickness.
          That's one picture of disability.
          Add to that first picture now (Paul, on the imaginary couch at work, watching the work get done by someone else to a lesser standard than he could have done it) – What if he had gotten up and forced himself to work? What if he had a day where he had less pain and decided, “I would like to work today”? How would he have felt the next day? What would have been the long-term repercussions? One good day of work would be followed by many days in worse pain. This is the reality of what many chronically ill people suffer with day to day. The physical pain is one thing. The mental anguish is another.
  

Recent thyroid scores and health update

I received great news today about my thyroid health! My test scores were all the best they have been in a long long time! We may need to increase my current dosage just a tiny bit, but everything looks great. The blood test scores revealed that I am utilizing my medicine well. Perhaps that is why I feel so good!

It is mid-late November now and I can still function! Compared to past years (and especially last year) I am doing very well! I can walk. I can dress myself and bathe myself. I can cook sometimes. I can wash dishes. I can do laundry. I get up at a decent time every morning. And, best of all, my joints don't hurt!

This is a miracle! Thank you, Lord!

My current daily regimen is:

Levothyroxine 112mcg
Moringa (Zija brand still works the best for me... I am not trying to make money with it. I use it because I can't function without it.)
5,000 IU vitamin D
Selenium 200 mcg
Zinc (Chelate) 30 mg
GarliX, by Xymogen (4- 6/day - because I am still fighting the candida in my body from years of living in moldy houses!)
Iron (as needed during the month)
Women's Phase 1, by Vitanica (2/day)
Magnesium Citrate 200mg
Probiotic 50 Billion (or more if needed)

Praise God from whom all blessings flow!

Chronically Sick Homeschool Mama: Makes Breakfast

source - wikicommons; Public Domain

I want to write useful information on this blog… both spiritually and practically useful. So, I am going to write some specific posts about what it looks like to be a homeschool mama when you are sick… and I mean really sick. (Though, these lessons could be applied to times of morning sickness as well as the chronic illness that I have suffered from.) Beginning with - HOW to make/manage breakfast when you are a sick homeschool mama.

(The following post was originally written in November 2013. I was sick then, but I became far more disabled before my remission in Spring 2014).

Right now, I am in a season of watching my big girl (age 11) make breakfast for our tribe. But, for years I suffered the horrible daily task of facing a hungry mob of kids age 4 and under who really could not do much for themselves. And, my list excludes store bought cereal because my kids respond so violently to refined sugar and grains. But, if cereal works for your family – by all means, utilize every short cut you can!

(Regarding food sensitivities and childrens’ behavior. It certainly appears, from scholarly research and my own life experience, that some food sensitivities cause behavioral issues with some children. I encourage you to keep a food journal and write down the food you and the kiddoes eat and your reactions to them. In my home, we found that certain grains make one of my boys present with all the appearances of ADHD. Being a sick mama with sick kiddoes is a whole ‘nother blog post… But, suffice it to say, do what you can within reason to keep your kiddoes well as much as is in your power.)

-         Pray and ask the Lord to show you what to make your kids for breakfast. Seriously. God wants you to involve Him in your life. He will answer you if you take time to ask and listen.

-         Plain yogurt with drizzle of honey or healthy jelly. Add fresh fruit on the side.

-         Oatmeal is your best friend. You (or your husband) can pre-make it the night before in a baked oatmeal recipe. You can throw together oatmeal “slop” even on your worst morning. (By slop, I mean plain old boring oatmeal. Use two cups of water to every one cup of rolled oats. Add a pinch of salt to the mix and cook on low.) For mama and six kids I make 4 cups of oatmeal with 8 cups water. When there were only a few kiddoes and they were smaller, I got by with two cups of oats. Add raisins, nuts, seeds, real maple syrup, or all kinds of goodies to spruce it up.

-         Eggs are a good go-to breakfast as well. You can scramble them fairly easily. And, really, cooking up a quiche is not all that more intensive than scrambling eggs. In fact, I think I prefer the quiche. Whisk the eggs, dump ‘em in the pie plate and cook ‘em. I cannot always add veggies, because most days these past few years I cannot cut vegetables, because my hand/forearm muscles do not function well. Buy pre-shredded cheese and add 1-2 cups in with the eggs. Or, if you feel like you have the strength to clean up the mess, have your kids shred the cheese… but I do not exactly “recommend” this.

-         Smoothies. Buy bananas on sale and freeze them with the peels off in a freezer bag. Buy frozen fruit. You can use store bought yogurt, store bought kefir, or pure fruit juices to mix in with the frozen fruit to make a smoothie. (If you are a truly sick mama, this is not the season of your life to try to make your own yogurt or kefir. Sure it might be “easy.” But, do you really need one more iron in the fire right now? Will the benefits or making your own truly outweigh the cost to your body and mind to make yourself feel like you need to make your own?)

-         If you have a condition that goes into “remission,” or you have some good months, consider freezer cooking during your good months. Just don’t overdo it, Mama! I know the temptation… you have one good day and you overdo it so much that you are laid up for the next three days… don’t do it, Friend, unless you have several consecutive MONTHS of health and wellness. Muffins, breads, and waffles have been a great freezer breakfast for my family.

-         During times when I felt less sick, I would make “hash” with sausage, store bought “southern style” potatoes, and scrambled eggs. 

-     Take a walk through the freezer section at your local grocery store. Those pre-made sandwiches look scrumptious! I never bought any, because it was cost prohibitive. But, it might work for some incomes.

-         Who says breakfast has to be “breakfast” foods?! Give the kids (preservative free) lunch meat and cheese roll-ups with a can of fruit. Heat up rice and beans (or any leftovers!) from last night’s dinner.

-         Jesus ate fish for breakfast (at least on one occasion). Cook up some salmon in the skillet. (This is one of our regular breakfasts nowadays).

-         If you have the money, consider buying healthy granola bars. Or, if you know you feel better in the afternoon than in the morning, make your own bars to eat tomorrow morning.

-         Natural peanut butter or almond butter and healthy jelly on healthy bread/toast. There were months on end that I can remember giving the kids peanut butter on Nature’s Own whole wheat bagels. The children started making this for themselves as early as age 4. Add a banana or an apple and it seems like a well-balanced meal to me! There were a few years the children and I nearly lived on frozen waffles and peanut butter for breakfast. It wasn’t ideal… but I had to do what I had to do.

I think one of the most important starting points is get the preconceived notions about “what a good mom gives her kids for breakfast” out of your head! You know your limits. No one else knows how you feel. You need to feed your children as well as you can with the resources you have (both financial and physical!). Ask the Lord to show you what you can and cannot do in terms of physical strength. Trust me, I speak from experience, the Lord would rather you feed the kids store bought cereal every day than wear yourself out by making an elaborate feast that will leave you depleted and open to the temptation to yell, curse, criticize, make mountains out of molehills, or whatever your vice is.

Don’t let yourself be bullied into making meals beyond your ability because you feel like it is what you are “supposed to” do! Too many moms are trying to live up to these expectations – most of which are unrealistic lies from the Enemy sent to destroy us.

What does the Lord say?

Better is a dry morsel and quietness with it
Than a house full of feasting with strife. Prov 17:1 (NASB77)

If you are hearing thoughts of condemnation because you did not make a “complete, balanced” breakfast that compares to a magazine cover, that is NOT the voice/thoughts of God!

There is therefore now no condemnation for those who are in Christ Jesus. Romans 8:1 (NASB77)

God’s primary concern is not what specific foods you give your children for breakfast, but rather your attitude while you serve them. Do you love your children? There are some mamas who put themselves under great strain trying to create the perfect diet for their kids, but in reality, doughnuts served with love and a smile would be healthier for your kids than eggs and turkey sausage served with a grimace and a side of discontentment and grumbling.

I hope you hear my heart on this. I can see times in the last ten years where I did very well. And, I see times where I was feasting with strife. I just want to caution and encourage other sick mamas from the trenches. I’ve been there. I am there now. But, fortunately, we made it through the days of having 4 kids age 5 and under. And, they all lived to tell about it. None of my kids lose sleep at night having nightmares about the days they used to eat frozen store bought waffles every morning for breakfast. Seriously. BUT, there have been seasons where my SuperMom gene was going strong and I tried to make elaborate whole food feasts that ended with kids and mama all screaming and/or crying. We do remember those days. Thank God that even those memories, when viewed through the proper lenses, do not bring condemnation. (Or, if they do, it is not from the Lord, and we can tell Condemnation to “take a hike.”) Your kids will remember that you served them as well as you can in your sickness. That is enough.

One last thought – your children are following your example, whether you want them to or not. Do you want your children to serve breakfast to their future families in the same manner that you do? There is time to change. Start today. Ask the Lord for wisdom and knowledge. He will hear you. He will answer you.

Consider it all joy, my brethren, when you encounter various trials, knowing that the testing of your faith produces endurance. And let endurance have its perfect result, that you may be perfect and complete, lacking in nothing. But if any of you lacks wisdom, let him ask of God, who gives to all men generously and without reproach, and it will be given to him. James 1:2-5 (NASB77)

Chronically Sick Homeschool Mama (reposted)

Reposted 07-22-2014 (Originally written November 9, 2013, during a health trial that got much worse...)

After getting a decent amount of sleep I feel a little more equal to the task of writing about what is going on in our home these days.

I am a sick mama. I’ve been trying to fight it. I’ve been trying to disguise it. I’ve been trying to outright deny it (to myself). But, the truth is, I am one sick mama.

The symptoms for which we recently expected a pituitary gland tumor were these: both ears ringing. Loudly. Since October 8^th. Lactating, though it has been more than half a year since I nursed the baby. Drastic change in appetite. Terrible weight gain. Forgetfulness. Headaches. And more.

As I noted yesterday, the MRI showed absolutely no problems with my brain. This is good news, but not necessarily easy news. Hear me out… I do NOT want to have a tumor! I do not want cancer, or MS. I am NOT saying that it would be easier to be sick from any of those awful causes! But, for a few days I felt like (for the first time in eight or so years) I was justified in my sickness. You cannot possibly understand unless you too have an invisible illness like chronic fatigue, or fibromyalgia, or hypothyroid, or some other undiagnosed sickness.

For years I have battled in my own mind how to be a mama of all these kiddoes and homeschool while I am so very sick. And, yet, no one really knows how sick I am. I do not necessarily “hide it.” I flatter myself to think that I am one of the most authentic people you will ever meet. (Let that sentence in and of itself tell you of my authenticity *winks*)

Yet… I am a recovering SuperMom. I am one of that class of homeschool mamas that wants to represent the homeschool movement (and the Lord!) so well that I push myself beyond my breaking point each and every day. My body would say “sleep, rest,” and my mind would say “but the dishes aren’t done!” As though the dishes are more important than my health. To be honest, it has been as though for the last eight or so years of homeschooling, I carry a host of condemning voices with me throughout my day.

These voices (or rather ideas/notions) enslaved me as only the most brutal task master could ever do. I was/am driven to have a perfectly clean house. Driven to have the perfect diet. Driven to be the perfect mom and have the perfect kids. And, usually these condemning voices/notions came at me in the form of believers… not unbelievers. Comparing myself to the blogger mom with ten kids who appears perfect. Comparing myself to the books I read that locked me into this cage in the first place. Seeing myself (I supposed) through the eyes of Christians who choose not to homeschool and (I supposed) were always pointing fingers at me. On and on goes the list.

So, yes, I am unwell… But, I don’t think the biggest problem I am currently facing is my thyroid scores being the worst my doctor has ever seen… or my chronic vitamin D deficiency… or anemia… or adrenal fatigue.

Honestly, the biggest sickness is the one in my heart/spirit. Yes, I am a very sick woman – physically. But, there is an even bigger issue that I need to be healed from… the disease of comparison and condemnation.

Because, you see, I would feel justified being sick if I had a diagnosis of a brain tumor. I would have finally – after all these years – given myself permission to slow down. To be sick. To take time to heal. But, there is a place in my mind that is still wanting to be SuperMom. “What?!,” it says, “And admit you aren’t the perfect mom?! That you are sick?”

This will not make sense to you unless you have been there. I am writing this post to those of you who have been there… who are there.

I am done. I am done trying to be SuperMom. I REPENT of the sin of PRIDE!

I awoke from a dream this morning that I was writing for a newspaper. I was a featured writer on page two. I was brainstorming ideas what I would write about. My list was all ideas of what it really looks like to be a homeschool family… and to be a sick homeschool mama, at that. The Lord, I believe, was showing me that I have to be a herald for the truth. (Of course I am a herald for THE Truth, Jesus Christ, first and foremost!) But, I need to be a voice that is NOT adding further condemnation to mamas who are already burdened.

Lord willing, I will be a voice of one who tells you how to un-strap those burdens off your backs as I learn how to cast aside my own.

Lord willing, this blog will be better used than ever before (by me, the primary author) to exalt the Lord and help us Christian families to see ourselves as the Lord sees us.

The Father loves us. He sent Jesus to die for us. He wants to strengthen us for the journey one day at a time. We are His flock of chicks, He is the Mama Hen who gathers us under His wings. We are all brothers and sisters, as well as fellow soldiers, who need to link arms and hold each other up through the battles of this life.

There is something seriously wrong with a Christian culture that leads to mamas who feel like they can’t even be sick! And, it is not all “in my head.” I have had real life people tell me that I can keep going and do all the things that [she] thinks I was supposed to be. (You know, homeschool mama - teach three languages, teach three musical instruments, and so forth…) I have had others who told me that I am not sick at all… I just need to “overcome” and press on.

Sick Mamas, we WILL overcome! But, overcoming might mean that in your sickness you learn to tame your tongue, you learn to let yourself be sick, you learn to be patient and content in all circumstances while the Lord is at work to conform you into the image of His Son while you participate in a small sampling of His sufferings. You WILL overcome. We WILL be more than conquerors. But, that might mean that you will remain in your sickness a bit longer while the Lord does His Perfect Work in your life.

For I consider that the sufferings of this present time are not worthy to be compared with the glory which shall be revealed in us. Romans 8:18 (NKJV)